Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 23
Filtrar
1.
BMC Geriatr ; 24(1): 266, 2024 Mar 18.
Artigo em Inglês | MEDLINE | ID: mdl-38500061

RESUMO

BACKGROUND: Due to the aging of the population, the promotion of healthy aging is an important part of public health. Healthy aging of the population can be influenced by the attitudes of the elderly themselves towards old age and aging. The aim of this cross-sectional study was to find out the attitudes of older people living in a community environment toward old age and the predictors that influence these attitudes. METHODS: The evaluation of attitudes towards old age using the WHO AAQ (Attitudes to Aging Questionnaire) questionnaire involved 1,174 elderly people living in the community. Age, sex, marital status, education, subjective health assessment, social support, depression (GDS-15), anxiety (GAI), sense of coherence (SOC-13) and self-esteem (RSES) were used to evaluate related factors. RESULTS: As part of the exploratory factor analysis, a three-factor model (Psychosocial Loss, Physical Change, and Psychological Growth) was confirmed. The Cronbach alpha was found to be acceptable (α = 0.835). The predictors of better AAQ in the Psychological Loss domain were: subjective health, age, quality of life, self-esteem, sense of coherence, life satisfaction, anxiety, and social support; in the Physical Change domain: subjective health, quality of life, self-esteem, life satisfaction, cohabitation, and depression; and in the Psychological Growth domain: age, self-esteem, sense of coherence, life satisfaction, and social support. CONCLUSION: Preventive and policy measures should aim to increase the satisfaction and self-assessment of the elderly, which can help them evaluate the period of old age more positively. It is also important to create a positive perspective of ageing and elderly in society.


Assuntos
Envelhecimento , Qualidade de Vida , Humanos , Idoso , Qualidade de Vida/psicologia , Estudos Transversais , Envelhecimento/psicologia , Atitude , Autoimagem , Inquéritos e Questionários
2.
Int J Older People Nurs ; 18(4): e12541, 2023 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-37092730

RESUMO

BACKGROUND: Evaluation of life satisfaction of older people using standardised tools can play a crucial role in evaluating the effectiveness of policy measures aimed at mitigating the effects of population aging. OBJECTIVES: The aim of the study was to verify the psychometric properties of the Czech version of a 12-item scale (the Life Satisfaction Index for the Third Age) for older people living in the community. METHODS: The research involved 1113 older people from the Moravian-Silesian Region over 60 years of age living in a home environment. For the newly created Czech version of LSITA-SF12, we tested validity (construct validity and convergent validity) and reliability (internal consistency). RESULTS: We confirmed a single-factor model for the LSITA-SF12 scale (χ2 = 71.33, p < .001, CFI = 0.995, TLI = 0.994, RMSEA = 0.065, SRMR = 0.056, GFI = 0.999) by confirmatory factor analysis and load factor analysis (values of explorations ≥0.45). The internal consistency of the scale was satisfactory (α = 0.878). Furthermore, there was a medium correlation rate (r = 0.592; p < .001) between the overall score of the LSITA-SF and quality-of-life score (OPQoL-Brief). CONCLUSIONS: We found the Czech version of the LSITA-SF12 questionnaire to have satisfactory psychometric properties. The questionnaire is suitable for use in research and clinical practice to evaluate the effectiveness of preventive measures. CLINICAL TRIAL REGISTRATION: ClinicalTrials.gov. PRS Protocol Registration and Results System; NCT05637177. IMPLICATION FOR PRACTICE: The LSITA_SF12 questionnaire can beadministered by a community gerontological nurse and can be used in clinicalpractice and research.


Assuntos
Satisfação Pessoal , Qualidade de Vida , Humanos , Pessoa de Meia-Idade , Idoso , Psicometria , Reprodutibilidade dos Testes , República Tcheca , Inquéritos e Questionários
3.
PLoS One ; 18(3): e0283772, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-36996129

RESUMO

OBJECTIVES: The aim of this cross-sectional study was to determine the life satisfaction of older people living in a home environment and to find out what predictors influence it. METHODS: The research involved 1,121 older people 60 years and above from the Moravian-Silesian region who live in a home environment. The short form of the Life Satisfaction Index for the Thirds Age (LSITA-SF12) was used to assess life satisfaction. The Geriatric depression scale (GDS-15), the Geriatric Anxiety Inventory Scale (GAI), The Sense of Coherence Scale (SOC-13), and the Rosenberg Self-Esteem Scale (RSES) were used to evaluate related factors. In addition, age, gender, marital status, education, social support, and subjective health assessment were evaluated. RESULTS: The overall life satisfaction score was found to be 36.34 (s = 8.66). The satisfaction of older people was classified into four grades: high satisfaction (15.2%), moderate satisfaction (60.8%), moderate dissatisfaction (23.4%), and high dissatisfaction (0.6%). The predictors of the longevity of the lives of older people were confirmed, both health factors (subjective health assessment, anxiety, and depression [Model 1: R = 0.642; R2 = 0.412; p<0.000]) and psychosocial factors (quality of life, self-esteem, sense of coherence, age, and social support [Model 2: R = 0.716; R2 = 0.513; p<0.000]). CONCLUSION: In implementing policy measures, these areas should be emphasized. The availability of educational and psychosocial activities (e.g. reminiscence therapy, music therapy, group cognitive behavioural therapy, cognitive rehabilitation) within the community care of the older people and university of third age is appropriate to increase the life satisfaction of the older people. An initial depression screening is also required as part of preventive medical examinations to ensure early diagnosis and treatment of depression.


Assuntos
Emoções , Qualidade de Vida , Humanos , Idoso , Qualidade de Vida/psicologia , Estudos Transversais , República Tcheca , Satisfação Pessoal , Depressão/psicologia
4.
BMJ Support Palliat Care ; 13(e1): e136-e143, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-32792418

RESUMO

OBJECTIVES: The aim of the research was to identify the most frequent symptoms of patients with progressive neurological disease (PND) in relation to their functional state. Another objective was to determine the effects of consultations with a multidisciplinary palliative team on mitigating the symptoms burden, subjective evaluation of health, disease progression and improvement of the functional state. METHODS: The interventional control study included 151 patients with PND (98 patients in the intervention group, 53 patients in the control group). The intervention group was provided with consultations of a multidisciplinary palliative team. The symptoms scale of the progressive neurological diseases quality of life was used to collect data. The patients completed the questionnaire before the provided intervention and 3 months after that. RESULTS: Pain and fatigue were identified as the symptoms that trouble the patients the most. After the intervention, there was a determined statistically significant improvement in the evaluation of 9 out of 11 symptoms (except excretion and urination) among the patients from the intervention group compared with the control group. When assessed again, the patients from the intervention group showed an improvement with respect to six symptoms (pain, fatigue, tremor, stiffness, cramps, excretion), while the patients from the control group had six symptoms that deteriorated (drowsiness, dyspnoea, stiffness, swallowing, salivation, excretion). There was not any confirmed positive impact of the intervention on the cognitive functions of the patients. CONCLUSION: The provision of consultations with the multidisciplinary palliative team to patients with PND in an advanced stage of disease resulted in decreasing their symptoms burden and improving their functional state.


Assuntos
Enfermagem de Cuidados Paliativos na Terminalidade da Vida , Cuidados Paliativos , Humanos , Cuidados Paliativos/métodos , Qualidade de Vida/psicologia , Dor , Fadiga
5.
BMC Geriatr ; 22(1): 512, 2022 06 22.
Artigo em Inglês | MEDLINE | ID: mdl-35733101

RESUMO

BACKGROUND: To evaluate the established interventions used for older adults, it is appropriate to use validated questionnaires for quality-of-life assessment. For older people, it is suitable to use specific questionnaires designed for old age and aging, with a lower number of questions. The aim of this research was to verify the psychometric properties of the Czech version of the OPQoL-brief questionnaire for seniors living in home environment in a community so that it can be used within the Czech Republic. METHODS: A cross-sectional study was performed on older adults in the Moravian-Silesian Region living at home. The study included 954 senior citizens (≥ 65 years, cognitively intact) (without diagnosed dementia, able to sign an informed consent). To test the psychometric properties of the created questionnaire, we tested the validity (construct validity, discriminant validity, convergent validity) and reliability (internal consistency, test-retest reliability). RESULTS: The single-factor model of the OPQoL-brief scale (CFI = 0.971, TLI = 0.959, RMSEA = 0.061, SRMR = 0.034, GFI = 0.960) was confirmed, for which excellent reliability was found (α = 0.921, ICC = 0.904). An inter-item correlation exceeding 0.5 was found for all items. Furthermore, a significant correlation was found between the overall score of OPQoL-brief and the scales measuring depression (r = - 0.520; p < 0.001), anxiety (r = - 0.355; p < 0.001), sense of coherence (r = 0.427; p < 0.001), and self-esteem (r = 0.428; p < 0.001). CONCLUSION: The results of our research revealed that the shorter Czech version of the OPQoL-brief questionnaire has appropriate reliability and validity and can be recommended for both health and social services to assess the quality of life of senior citizens in a community.


Assuntos
Qualidade de Vida , Idoso , Estudos Transversais , República Tcheca/epidemiologia , Humanos , Psicometria , Reprodutibilidade dos Testes , Inquéritos e Questionários
6.
Omega (Westport) ; 85(1): 4-22, 2022 May.
Artigo em Inglês | MEDLINE | ID: mdl-32571138

RESUMO

The objective was to identify the attitudes of progressive neurological disease (PND) patients and their family members regarding end-of-life care, and their worries about dying. The sample included 327 participants. The Attitudes of Patients with PND to End-of-Life Care questionnaire was used to collect the data. Statistically significant differences in the assessment of attitudes towards end-of-life care between patients and family members were identified (p < 0.001). Family members more frequently favored patients being kept alive at any cost; patients more commonly wished to have their end of life under control. Respondents most frequently deferred to doctors when it came to decisions on treatment to keep patients alive. However, both patients and family members wanted patients to be able to decide on their treatment by leaving a written record of their previously stated wishes. The demands of patients and their families regarding end-of-life care should be documented in individual care plans.


Assuntos
Assistência Terminal , Atitude , Estudos Transversais , Família , Humanos , Inquéritos e Questionários
7.
Am J Hosp Palliat Care ; 38(11): 1348-1355, 2021 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-33380155

RESUMO

BACKGROUND: Patients with MS should be provided palliative care, which could help them manage symptoms more efficiently and could solve some psychosocial problems. Evaluating the satisfaction with provided care may be one of the factors of the quality of care evaluation. AIM: The aim of this controlled intervention study was to determine the factors affecting one's satisfaction with care in patients in advanced stages of MS and their caregivers. Furthermore, the aim was to study the difference in the satisfaction of patients and family members with the provided specialized palliative care, as opposed to the standard care. METHODS: The sample consisted of 103 patients with MS who were randomized to either a palliative care intervention or the control group. Family members of each patient were invited in the study, and 97 caregivers agreed to participe. The patients in the intervention group were provided with neuropalliative care in the form of consultations with a multidisciplinary palliative team. A modified questionnaire, CANHELP Lite, was used to collect data. Patients and family members completed the questionnaire 3 months after the intervention. RESULTS: The patients and caregivers in the intervention group expressed significantly greater satisfaction in all analyzed areas (p = 0.000-0.002). The provided intervention predicted the satisfaction in the domains of a relationship with the doctor, disease management, and decision-making/communication. Another important predictor of the satisfaction in all domains was the functional state of the patient. CONCLUSION: Targeted consultations resulted in the greater satisfaction of patients with MS and their caregivers with the provided care.


Assuntos
Esclerose Múltipla , Cuidados Paliativos , Cuidadores , Família , Humanos , Esclerose Múltipla/terapia , Satisfação do Paciente , Satisfação Pessoal
8.
BMC Palliat Care ; 19(1): 143, 2020 Sep 16.
Artigo em Inglês | MEDLINE | ID: mdl-32938447

RESUMO

BACKGROUND: It is recommended that patients with progressive neurological disease (PND) receive general and specialized palliative care. The purpose of this study was to determine the effect of neuropalliative care on quality of life (QoL) and satisfaction with provided care in both patients with PND in advanced stages of disease and their family caregivers. METHODS: The sample consisted of 151 patients with PND and 140 family caregivers. The PNDQoL questionnaire was used for data collection. Patients and family caregivers completed the questionnaires both before and 3 months after the intervention. RESULTS: Before intervention, there were no statistically significant differences in the individual domains of QoL in patients and family caregivers in either the intervention or the control group. After intervention, differences were identified in the sample of patients in the domains of symptoms burden (p < 0.001), emotional (p < 0 .001), social functioning (p = 0.046), spiritual area (nonreligious) (p = 0.050), and in QoL. In the sample of family caregivers, there were differences in the domains of symptoms burden (p < 0.001), emotional functioning (p = 0.016), spiritual area (nonreligious) (p = 0.042), and in the assessment of health (p = 0.002), and QoL (p = 0.002). Patients and family caregivers from the intervention group evaluated their satisfaction with the quality of care provided significantly more positively in all five analyzed domains. CONCLUSION: The provision of neuropalliative care to patients with advanced stages of PND helped to maintain and slightly improve their QoL, and symptoms burden, and resulted in a more positive assessment of satisfaction with the quality of care provided.


Assuntos
Doenças do Sistema Nervoso/enfermagem , Enfermagem em Neurociência/normas , Cuidados Paliativos/normas , Satisfação do Paciente , Adulto , Idoso , Idoso de 80 Anos ou mais , Cuidadores/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Doenças do Sistema Nervoso/complicações , Enfermagem em Neurociência/estatística & dados numéricos , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Qualidade de Vida/psicologia , Inquéritos e Questionários
9.
Eur Neurol ; 83(4): 380-388, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32721963

RESUMO

BACKGROUND: Only a few studies have been done focusing on the quality of life (QoL) of patients with multiple sclerosis (MS) as well as their family members. The aim of our research was to determine the factors that influence the QoL of MS patients in advanced stage of disease and their caregivers. METHODS: The sample of the cross-sectional study included 153 patients with MS and 74 caregivers. QoL was measured using the PNDQoL questionnaire (Progressive Neurological Diseases Quality of Life), and the severity of illness was assessed through the following scales: EDSS (Expanded Disability Status scale), PPS (Palliative Performance Scale), and ADL (Activity Daily Living). RESULTS: The following predictors of the global QoL of the MS patients were identified - age, EDSS, symptom burden, daily care, emotional functioning, and spiritual_nonreligion functioning (R2 = 0.569; F = 32.900; p < 0.001). The following predictors of the global QoL of caregivers were identified - age, emotional functioning, spiritual_nonreligion functioning, patient's QoL, and feeling of care (R2 = 0.431; F = 18.690; p < 0.001). CONCLUSION: Appropriate intervention should be directed particularly at older patients and caregivers who have faced the disease for longer time and at patients without any partner. Supporting the emotional and social well-being and mitigating the burden caused by symptoms of the patients as well as caregivers can improve the QoL of both groups.


Assuntos
Cuidadores/psicologia , Família/psicologia , Esclerose Múltipla/psicologia , Qualidade de Vida/psicologia , Adulto , Idoso , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
10.
BMC Med Ethics ; 21(1): 28, 2020 04 15.
Artigo em Inglês | MEDLINE | ID: mdl-32293407

RESUMO

BACKGROUND: Knowing the opinions of patients with Progressive Neurological Diseases (PNDs) and their family members on end-of-life care can help initiate communication and the drawing up of a care plan. The aim of this paper is to describe the creation and psychometric properties of the newly developed APND-EoLC questionnaire (the Attitudes of Patients with Progressive Neurological Disease to End of Life Care questionnaire). METHODS: Following focus group discussion, four main areas of interest were identified: patients' and family members' attitudes towards end-of-life care, factors influencing decisions about treatment to prolong patients' life, concerns and fears regarding dying, and opinions on the system of care. The created questions were divided into domains based on factor analysis and psychometric properties were evaluated by sample of 209 patients with PND and 118 their family members. RESULTS: The final version of the scale contains a total of 28 questions divided into six domains (end-of-life control, keeping patients alive, trust in doctors/treatment, trust in social support, sense of suffering, and dependence/loss of control) and five individual questions determining views of the care system with specified response options. Construct validity was verified by confirmatory factor analysis for each evaluated area individually. Appropriate psychometric properties were identified in the questionnaire. CONCLUSIONS: The APND-EoLC questionnaire can be recommended for use in both research and clinical practice.


Assuntos
Atitude Frente a Saúde , Psicometria , Assistência Terminal , Atitude , Família , Feminino , Humanos , Masculino , Gravidez , Reprodutibilidade dos Testes , Inquéritos e Questionários
11.
BMC Neurol ; 19(1): 250, 2019 Oct 25.
Artigo em Inglês | MEDLINE | ID: mdl-31653233

RESUMO

BACKGROUND: Progressive neurological diseases, such as multiple sclerosis, Parkinson's disease, Huntington's disease, significantly interfere with patients' lives, and those of their families. The aim of the research was to establish whether the extent of the information on patients' health conditions, and the way patients learn this information from doctors affect their adaptation to chronic and progressive diseases. METHODS: Qualitative methodology was used for a total of 52 participants (patients with progressive neurological diseases, their family members, and health and social workers). Data were collected using individual, in-depth interviews and focus groups. Analysis of data for interpretation, conceptualization, and re-integration was performed by open, axial, and selective coding. RESULTS: It was determined that adequate information about patients' health status, and the use of coping strategies are related to their adaptation to their disease, and consequently, to their quality of life. The participants often considered the extent of the information provided, and the way they were informed to be inadequate. Receiving the diagnosis, the progression of the disease, and the end of life were found to be the most burdensome. CONCLUSION: Our results show that Czech neurologist should develop better communication skills, particularly for informing patients with progressive neurological diseases. Open communication, emotional support, and support in selecting effective coping strategies can help patients adapt more readily to their disease, and improve their quality of life.


Assuntos
Adaptação Psicológica , Doenças Neurodegenerativas/psicologia , Neurologistas , Relações Profissional-Paciente , Adulto , Família/psicologia , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Qualidade de Vida/psicologia
12.
PLoS One ; 14(3): e0214395, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-30908542

RESUMO

BACKGROUND: Caring for patients with a progressive neurological disease (PND) causes stress that may impact on the state of health as well as the quality of life of the caring family. OBJECTIVE: The aim of the study was to explore the unmet needs of the family members of patients with PND in advanced stages. METHODS: Grounded theory (constructivist approach) was used to conceptualize the patterns of unmet care needs. Data collection methodology involved focus groups (n = 4) and interviews, in which a total of 52 people participated (patients, family members, and professionals). RESULTS: Based on the data analysis, three domains (family situation, role of the caregiver, and professional help) were identified, which illustrate the unmet needs. In particular, lack of information about the disease and available support available resulted in a deterioration mutual understanding between the patient, family, and the medical staff; also increased stress for the caregiver, and lowered quality of life for the caring family. CONCLUSION: Family members expect health workers to provide them with support, which includes informing them about the possible help available from the health and social welfare systems.


Assuntos
Cuidadores/psicologia , Pessoal de Saúde/psicologia , Doenças do Sistema Nervoso/terapia , Adulto , Idoso , Idoso de 80 Anos ou mais , República Tcheca , Feminino , Teoria Fundamentada , Necessidades e Demandas de Serviços de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Avaliação das Necessidades , Qualidade de Vida , Estresse Psicológico
13.
J Palliat Care ; 34(1): 38-46, 2019 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-30227785

RESUMO

AIM:: The aim of our research was to explore the unfulfilled needs of patients with a progressive neurological disease in advanced stage of the illness within the current system of health and social care in the Czech Republic. DESIGN AND SETTING:: Qualitative research (grounded theory) was used to conceptualize the patterns of unmet palliative care needs in Czech Republic. METHODS:: The data collection method comprised individual, in-depth interviews (n = 19) and focus groups (n = 4) where a total of 52 respondents participated (patients with progressive neurological diseases [PNDs], family members, and professionals). RESULTS:: Two main categories of unfulfilled needs were determined (life with the disease, professional help), and they were described in the context of the 3 crucial themes identified in the study-the symptoms of the advanced stage of the disease resulted in substantial reduction of physical self-sufficiency, loss of autonomy, and social isolation; the level of dependence on the support and help of others increased; the patients also highlighted several problems related to health-care services. CONCLUSION:: The unmet needs should be taken into consideration when creating the concept of the neuropalliative and rehabilitation care, including the mental health support plan, because of the emotional, behavioral, and cognitive disorders that frequently occur in the lives of a substantial amount of patients with PND.


Assuntos
Adaptação Psicológica , Necessidades e Demandas de Serviços de Saúde , Doenças do Sistema Nervoso/enfermagem , Doenças do Sistema Nervoso/psicologia , Cuidados Paliativos/organização & administração , Qualidade de Vida/psicologia , Estresse Psicológico/terapia , Adulto , Idoso , Idoso de 80 Anos ou mais , República Tcheca , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
14.
Cas Lek Cesk ; 157(1): 41-45, 2018.
Artigo em Tcheco | MEDLINE | ID: mdl-29564907

RESUMO

In patients with amyotrophic lateral sclerosis (ALS), it is advisable to provide multidisciplinary care, due to rapid progression and specific disease symptoms, in order to maintain the best quality of life for the patient and their family. Abroad, questionnaires and scales are used to assess the patient´s health condition, to determine disease progression, followed by the provision of personalized care. The aim of this review article is to describe and analyze the scales used in evaluating ALS patients in both functional and psychosocial areas. Having searched in electronic databases, 14 scales for patients with ALS or motor neuron disease were found, and 4 scales for patients with chronic diseases, which are appropriate and used also in patients with ALS. The ALSFRS scale (The Amyotrophic Lateral Sclerosis Functional Rating Scale) is most often used for assessment of functional status. All areas of care are best covered in the ALSSQOL-R (Amyotrophic Lateral Sclerosis Specific Quality of life) questionnaire, designed for assessment of quality of life. The use of both scales is recommended in clinical practice and research.


Assuntos
Esclerose Lateral Amiotrófica , Esclerose Lateral Amiotrófica/diagnóstico , Progressão da Doença , Humanos , Qualidade de Vida , Inquéritos e Questionários
15.
J Palliat Care ; 32(2): 69-76, 2017 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-28884618

RESUMO

BACKGROUND: Currently, there are no studies aimed at evaluating the quality of life (QoL) of patients with end-stage disease during hospitalization and the factors that influence it. AIM: The aim of the research was to identify predictors of change in the QoL of patients hospitalized due to advanced stage of disease. METHODS: The sample consisted of 140 patients with end-stage disease who were hospitalized on this account. For evaluation of QoL, the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30) was used. The Hospital Anxiety and Depression Scale and Karnofsky Performance Status questionnaires were used for the assessment of mental and functional status. For the evaluation of predictors of negative change in QoL, a logistic regression analysis was used. RESULTS: During hospitalization, there was a significant deterioration in the scores given for all domains of the functional QLQ-C30 scale, but not the symptomatic scale. Predictors of change in overall QoL detected were marital status, improved functional status, and depression detected on admission to hospital. Gender and age were found to be protective factors against deterioration in overall QoL. CONCLUSION: Sociodemographic characteristics and mental and functional status may be associated with change in QoL of patients with end-stage disease during hospitalization.


Assuntos
Atitude Frente a Morte , Atitude Frente a Saúde , Qualidade de Vida/psicologia , Assistência Terminal/psicologia , Doente Terminal/psicologia , Idoso , Idoso de 80 Anos ou mais , República Tcheca , Feminino , Previsões , Hospitalização/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria , Inquéritos e Questionários
16.
Aging Ment Health ; 21(12): 1287-1293, 2017 12.
Artigo em Inglês | MEDLINE | ID: mdl-27565013

RESUMO

OBJECTIVES: The study aimed to assess the psychometric properties of the Czech versions of the Quality of Life in Late-Stage Dementia (QUALID) and the Cognitively Impaired Life Quality (CILQ) scales for use in the palliative care setting in terminally ill patients with cognitive impairment. METHODS: The sample comprised 306 cognitively impaired inpatients with advanced cancer and non-cancer conditions. In this cross-sectional study, two Quality of Life (QoL) measurements were performed at baseline and after five days. The dimensionality of the QUALID and CILQ scales was evaluated using a principal component analysis with Varimax rotation. Reliability was assessed using Cronbach's alpha; inter-rater reliability was evaluated with Kappa index. Test-retest stability was calculated using the intraclass correlation coefficients (ICCs) comparing scores from baseline and 3-5 days post-baseline. The construct validity of the QUALID and CILQ scale was established by Spearman's correlation coefficients with the Symptom Management at the End-of-Life in Dementia (SM-EOLD). RESULTS: Both scales were shown to have adequate validity and reliability (Cronbach's α = 0.812 for QUALID, and α = 0.73 for CILQ), good inter-rater agreement (QUALID: κ = 0.760; CILQ: κ = 0.801) as well as test-retest reliability (QUALID: ICC = 0.847; CILQ: ICC = 0.925). CONCLUSION: The Czech versions of the QUALID and CILQ scales may be recommended for use in the Czech Republic in the area of palliative care.


Assuntos
Disfunção Cognitiva/psicologia , Cuidados Paliativos/psicologia , Psicometria/instrumentação , Qualidade de Vida/psicologia , Inquéritos e Questionários/normas , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , República Tcheca , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Reprodutibilidade dos Testes
17.
Cas Lek Cesk ; 155(3): 25-30, 2016.
Artigo em Tcheco | MEDLINE | ID: mdl-27256145

RESUMO

Faecal incontinence presents gastrointestinal disorder with high prevalence (more than 2% of population) and serious impact on the quality of life. General practitioners, gastroenterologists and colorectal surgeons play the principal role in screening, diagnostics and providing health care to patients who suffer from faecal incontinence. Insufficient knowledge about faecal incontinence and minimal training aimed at its diagnostics and therapy lead to the low quality of provided health care.Authors offer comprehensive up-to-date review focused on faecal incontinence - its definition, prevalence, seriousness, consequences, pathophysiology, diagnostics and management. Detailed anatomical and physiological assessment of each patient is fundamental in determining correct cause of faecal incontinence and consequent selection of the most appropriate therapeutic modality.Broad spectrum of available therapeutic options comprises conservative management (lifestyle modification, diet, medications, and absorbent tools), biofeedback and surgical interventions (sphincter augmentation, sphincter reconstruction, sacral nerve stimulation, sphincter substitution and stools diversion). Application of the most appropriate treatment can lead in majority of patients to significant improvement in faecal incontinence and quality of life. Early diagnosis prevents possible complications, which would possibly deteriorate patients quality of life.


Assuntos
Canal Anal , Tratamento Conservador/métodos , Incontinência Fecal/prevenção & controle , Incontinência Fecal/terapia , Qualidade de Vida , Adulto , Biorretroalimentação Psicológica , Terapia por Estimulação Elétrica/métodos , Terapia por Exercício/métodos , Humanos , Estilo de Vida , Magnetoterapia/métodos
18.
Arch Gerontol Geriatr ; 65: 79-84, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27010346

RESUMO

BACKGROUND: Fecal incontinence (FI) is a significant health problem among the elderly, with a devastating effect on their quality of life. The aim of the present study was to describe the prevalence and severity of FI among nursing home residents, and to investigate factors associated with FI. METHODS: This was a cross-sectional study conducted in nursing homes in Ostrava, Czech Republic. Demographics and comorbidities were extracted from medical records of nursing homes. Data regarding incontinence were obtained via face-to-face interviews with residents or extracted from registered nurses' accounts (regarding residents with severe cognitive impairment). RESULTS: In total, 588 nursing home residents were enrolled into the study. FI was noted in 336 (57.1%) participating residents. The majority of FI residents (57.8%) reported FI episodes several times a week; daily FI episodes were found in 22.9% of the FI residents. The mean Cleveland Clinic Incontinence Score in FI residents was 17.2±1.8 (mean±SD). Factors associated with FI (statistically significant) were poor general health status (≥4 comorbidities), urinary incontinence, cognitive-function impairment (dementia), decreased mobility, and length of nursing home residency. There was no association between FI and age, sex, body mass index, or living with/without a partner. CONCLUSIONS: Our data indicate that FI is still a serious health problem-FI currently affects more than half of the nursing home residents in Ostrava, Czech Republic. The study outcomes (revealed high prevalence and seriousness of FI) emphasize the importance of close monitoring and appropriately managing FI in nursing home residents.


Assuntos
Incontinência Fecal/epidemiologia , Instituição de Longa Permanência para Idosos/estatística & dados numéricos , Casas de Saúde/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Transtornos Cognitivos/epidemiologia , Comorbidade , Estudos Transversais , República Tcheca/epidemiologia , Feminino , Nível de Saúde , Humanos , Masculino , Prevalência , Qualidade de Vida , Fatores de Risco
19.
Palliat Support Care ; 14(2): 129-37, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-25851115

RESUMO

OBJECTIVE: Although assessment of palliative patients' needs is a key issue in palliative care, a suitable instrument for identification of such needs is not available in Central European countries. Our objectives were to produce an adequate tool for identifying the importance and satisfaction of palliative patients' needs and to verify its psychometric properties. METHOD: The patient needs assessment in palliative care (PNAP) instrument was constructed based on a literature review and qualitative research (focus groups, n = 5). The psychometric properties of the questionnaire were verified by a cross-sectional study. The convergent validity of the questionnaire was determined by confirmatory factor analysis. Furthermore, internal consistency, test-retest reliability, and construct validity were also tested. The qualitative research group comprised 30 participants (27 experts in palliative care, 1 patient, and 2 family members). Psychometric properties were evaluated in a group of 349 hospital inpatients terminally ill with chronic disease or cancer and receiving palliative care. RESULTS: Based on the qualitative data analysis, a questionnaire was constructed that contained 42 items grouped into 5 domains. When testing the psychometric properties of the questionnaire, a new model containing 40 items in 7 domains was produced. Cronbach's α for the entire PNAP questionnaire was 0.89 on the importance scale and 0.80 on the satisfaction scale. Test-retest reliability was higher than 0.7 for all domains in both scales. SIGNIFICANCE OF RESULTS: The results of tests on the psychometric properties of the PNAP questionnaire showed at least satisfactory validity and reliability, and it can be employed to assess the needs of palliative care patients in Central European countries.


Assuntos
Avaliação das Necessidades/normas , Cuidados Paliativos/métodos , Psicometria/instrumentação , Qualidade de Vida , Estudos Transversais , Europa (Continente) , Feminino , Grupos Focais , Humanos , Masculino , Cuidados Paliativos/normas , Psicometria/métodos , Pesquisa Qualitativa , Reprodutibilidade dos Testes , Inquéritos e Questionários
20.
Palliat Support Care ; 14(2): 142-50, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-26373708

RESUMO

OBJECTIVE: Identification of areas that family members consider important and in which they need help and support is one of the main goals of palliative care. Our research aimed to assess the psychometric properties of a Czech version of the Family Inventory of Needs (FIN). METHOD: The group comprised 272 family members of terminally ill cancer patients at the University Hospital in Ostrava. Reliability was assessed by internal consistency (Cronbach's alpha), test-retest reliability, and correlation of both scales and items within the scales (item-total correlation). To verify construct validity, exploratory factor analysis and principal component analysis with a varimax rotation were utilized. RESULTS: Using exploratory factor analysis, the following four factors (domains) were extracted: basic information, information on treatment and care, support, and comfort of the patient. Cronbach's α for the entire questionnaire was 0.924 on the importance scale and 0.912 for the satisfaction scale; for all domains, a value of α greater than 0.7 was ascertained. Test-retest reliability was also higher than 0.7 for all domains. On the satisfaction scale, a moderate correlation was confirmed between unmet needs in the domains basic information, support, and comfort of the patient, and the total score, and in selected quality-of-life domains. SIGNIFICANCE OF RESULTS: The results of tests on the psychometric properties of the FIN questionnaire demonstrated at least satisfactory validity and reliability, and confirmed that it can be employed to assess the needs of palliative care patients in the Czech Republic.


Assuntos
Família/psicologia , Avaliação das Necessidades , Psicometria/instrumentação , Reprodutibilidade dos Testes , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , República Tcheca , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/psicologia , Cuidados Paliativos/métodos , Cuidados Paliativos/normas , Inquéritos e Questionários
SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA